The feeding tube has finally been removed. It hasn't been used in weeks (three weeks?), but they didn't want to make a special trip to the clinic. At the moment, kind of looks like he has 3 belly buttons (the normal one, plus one at the trach site, and one at the PEG site).
The appointment was tagged onto another follow-up with nephrology (kidney) and hypertension. They are moving forward with possible genetic testing to see if a rare condition caused his high blood pressure. A diagnosis that direction changes the treatment.
Medications are being adjusted in hopes that he can stand longer without getting dizzy.
In the background: their old apartment is officially closed down and the new one is packed (PACKED) with boxes. Julie and hubby are going to the coast for three days.
Legacy of Federal Control
3 years ago
Additional update: Julie received mail indicating that the state will be "conducting an unannounced on site investigation" on the rehab/nursing facility where Bill, Ayn, and Julie experienced so many problems.
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